“Dad, I feel normal for the first time in years.”
This one statement drove me to tears. My daughter feels normal. My daughter acts normal!
I haven’t posted in weeks. My family has been in survival mode for so long. Life happens and it is not always good. My son and his wife made a major move to a new town and new job situation. My daughter finally agreed to have some testing performed thanks to her two best friends who agreed to accompany her. The stress level has been beyond 10 for so long I don’t know what it feels like to be normal. But, I will try and become familiar with the feeling again.
My daughter, Casey, in her long protracted battle with migraines and seizures has finally found the perfect medication combination and over the past three weeks my wife and I have watched her blossom and bloom. We have our daughter back! Sorry, but I have to keep the tears off the keyboard. I’ll be back in a moment.
Okay, so I want to thank my blog readers for their thoughts and prayers during this time. Casey is back to her normal self, something we haven’t seen in years.
Through all of this, I have continued to work on my next two books. For the readers of the Chronicles of Jonathan Steel (both books are great summer reads if you haven’t tried them!) I will have the third book available by the end of October, first of November. I am keeping my promise to you, my readers, of having a book out once a year in this story arc.
I am also finishing the final manuscript chapters for the update to “Conquering Depression” with my co-author, Mark Sutton. More on that in the near future, but I am so excited about the opportunity B&H Publishing is giving us to update this book and bring it into the 21st century!
That’s all for now. I’ll be blogging again very soon. I just wanted to take a moment to thank everyone for their thoughts and prayers. God is so good!
Just a teaser:
The 11th Demon: The Ark of Chaos
Just when Jonathan Steel thought he would get a break, he discovers that his mentor, Cephas Lawrence has purchased the house once owned by the evil Robert Ketrick, once in league with the thirteenth demon. And, trapped within the walls of the house’s basement is a dark secret that threatens their existence. When Vivian Darbonne Ketrick arrives in Shreveport to locate the Ark of the Demon Rose, a new evil organization appears to rival the Council of Darkness. Soon, Jonathan, Josh Knight, Cephas, and Theophilus King find themselves involved in government conspiracies, evil powers, and in the clutches of not one, but two powerful demons! What is in the Ark of the Demon Rose? Why is Vivian looking for it? And, who are the mysterious white eyed minions of evil who make Vivian look like a Girl Scout? Find out in the latest installment of the Chronicles of Jonathan Steel in “The 11th Demon: The Ark of Chaos”. Available this fall.
“I’m not as strong as you think I am. I am very afraid.”
Many of you have been kind enough to read my posts about my daughter’s struggle with migraines. At the age of 9, my daughter went through a grueling ten day ordeal in California. She underwent 24 hour EEG monitoring attached to a 25 foot tether and isolated in an ICU room. It was the worst time of her life, she told me recently. Although that event was 17 years ago, her memories of those days remain strong. She now has to go through these tests again, this time for her migraines. When she learned about this back in April, she was adamantly against the tests.
For weeks she has been in limbo, too afraid to face those tests again. I have always regarded her as the bravest person in the world for all of the struggles she has faced with her disease. I was shocked when she told me she was afraid. I shouldn’t have been. In spite of her courage, she is tired of fighting this unrelenting, chronic disease that is robbing her of the quality of her life. But, her two best friends, Angelique and Sarah have agreed to go with her and stay with her if she will have the test.
And so, next week, my brave daughter will once again face the most horrifying days of her memory. Only my wife and her will not be alone. She will have friends with her. Please pray for her next week as she struggles to find the courage and the faith to face this one more time.
I visited the mall in Dallas today that inspired the opening scene in “The 12th Demon: Mark of the Wolfdragon”. By the way, both “The 13th Demon” and “The 12th Demon” are excellent summer reads. One of my fans sent me an email this past week asking about the next book. He is re-reading “The 13th Demon” to get ready for the next book. Wow! I am humbled.
Anyway, I thought you might enjoy seeing the ice skating rink and the tiered mall where Jonathan Steel, Joshua Knight, and Atchison, the skanky lawyer were sitting in the opening scene. The Chinese restaurant is gone and now replaced with a Subway. Go figure! But, you can also see the maintenance catwalk that inspired the scene. Of course, I am not going to tell you which mall it is. Come to Dallas and explore and you will find it.
Which brings up another development.
Will there be a next book? Yes. I am currently working on a deal to release “The 11th Demon: Cult of the Chimera”. The Jonathan Steel Chronicles is not dead yet! If all goes as planned, you will see the next book right here on this website available by the end of October as promised.
To give you some hint as to what the book involves here are some intentionally vague statements:
The story begins in 1963.
There is an arcane chest filled with an evil secret.
Yes, Steel and company end up moving into Robert Ketrick’s creepy house (from “The 13th Demon”).
You will learn a terrible secret from Cephas Lawrence’s past.
You will learn what drove Theophilus Nosmo King to a life of drug addiction.
Vivian gets a new love.
An old enemy returns.
Finally, you will learn that the Dark Council is NOT the only evil organization in the world!
I will bring periodic updates to the website so keep track.
Where was God? Again? We’re asking that question again? If we don’t need God, then why do we keep asking where He is? Why do we keep expecting God to show up and protect us when we don’t believe in Him any more? Why not expect Zeus or Athena or some other god to show up? If we no longer believe there is anything supernatural out there then why do we keep appealing to the supernatural? Why do we keep seeking God?
Here is why:
For what can be known about God is plain to them, because God has shown it to them. For his invisible attributes, namely, his eternal power and divine nature, have been clearly perceived, ever since the creation of the world, in the things that have been made. So they are without excuse. For although they knew God, they did not honor him as God or give thanks to him, but they became futile in their thinking, and their foolish hearts were darkened. Claiming to be wise, they became fools, and exchanged the glory of the immortal God for images resembling mortal man and birds and animals and creeping things. Therefore God gave them up in the lusts of their hearts to impurity, to the dishonoring of their bodies among themselves, because they exchanged the truth about God for a lie and worshiped and served the creature rather than the Creator, who is blessed forever! Amen. Romans 1:19-24 (ESV)
God has put eternity in the hearts of all men. We are more than just animals. We are made in the image of God. We are filled with God’s attributes: love, creativity, empathy, mercy, compassion, self awareness.
So, how does this all figure in to the events of the last week? Oh, I’m sorry. You thought I was talking about the events in Boston! No, I’m talking about the events that took place in Austin. We went down to Austin to celebrate my daughter-on-law’s completion of her Ph.D. Here is a picture of us at her party (A Doctor Who themed party! You can see more pictures here.)
My daughter, Casey, had her first seizure when she was 8 years old. The subsequent two years were hell on earth trying to figure out the kind of seizures she had and how to treat them. We ended up at the Epilepsy Center in Los Angeles, one of only two such centers at the time. My little 9 year old daughter was attached to EEG leads for 24 hours a day on continuous video monitoring in a small hospital room. She couldn’t go more than ten feet from her bed and my wife stayed with her for 10 days before they made the diagnosis.
We treated Casey through four different neurologists over the years of her childhood. Just when we would find a good pediatric neurologist, that person would leave our local medical school and we would have to find another one. At Casey’s school, we had to go through the tedious process of getting the teachers to help Casey with her lessons and her instructions as the seizures affected the part of her brain that controlled reading comprehension.
Middle school years were a nightmare. Young girls are, no doubt, the cruelest creatures on the face of the planet. In the sixth grade, Casey endured 9 weeks of torture and extortion at the hands of a gang of girls before we found out the reason she was covered in bruises. We thought she was having a reaction to her meds!
Then, we had to find her a private school where she wouldn’t get beaten up every day for being “different”. She finally made it through middle school. But, the high school in our district would have the same girls as that middle school. Casey’s grades would not allow her to be in a “magnet” school. And, now at the private school, the high school age girls were even more cruel to her because she did not attend the church that ran the school.
We had to sell our dream home, build a new house, and move to another school district so Casey could get into a high school where she would not be tortured. She found peace and acceptance among her peers at this school, but now we had to weather the storm of standardized testing. Casey had to pass certain benchmark standardized tests to move up in high school and all of these tests relied on reading comprehension. There were NO exceptions for her seizures. Her senior year in high school, we had to change her medication and we knew she would have some breakthrough seizures so we planned that transition during the time she would take these tests so we could get a personal tutor hired by the school district to come and administer the test at home in anyway possible for Casey. She passed and walked across the stage in 2006 to receive her diploma. It was the proudest day of her life!
Since 2006, Casey has continued to struggle with her seizures. We had to transition her to a neurologist specializing in adults and to our dismay, there were NO neurologists in our town who specialized in seizures. Frustration after frustration ensued as Casey’s symptoms began to change and involve her face and her mouth even on maximum medication. She tried college and had to drop out because her professors did not understand her disease! Her last semester in college, the professor locked her out of the room and told her she had been faking her illness!
Our neurologist in January 2012, “fired” us. This from one of my fellow physicians! I was furious! I was so frustrated! Casey was approaching the age of 25 and she literally had no life! Now, at this point I should have been shaking my fist at God. But, I didn’t. My wife didn’t. And, to Casey’s credit, she had long ago accepted that this was her lot in life.
In June, 2012 God worked a miracle and we found a new neurologist in New Orleans. He saw Casey and instantly drew a totally different conclusion. Casey suffered from an extremely rare form of migraines, not seizures! She also has a rare metabolic disorder that produces this problem easily corrected by vitamins. Since June, we have been in the process of trying to wean her off of 17 years of seizure medication and onto migraine medication.
Christmas was horrendous. Her “auras” as they are now called were debilitating and our neurologist finally added a new migraine medication that caused the symptoms to stop. But, the side effect for Casey has been depression and weight loss.
Which brings me to last week. We went to Austin to celebrate my daughter-in-law’s completion of her Ph.D. from UT Austin. From the minute we arrived Thursday before last, I was apprehensive. All I could think about was something bad happening to Casey. I don’t know why, but there it was. The first night, Casey had a pretty bad “aura” at the restaurant. Every day, she had these “attacks” where her mouth would stop working and she would grow weak on the left side of her face. Monday morning, April 15th, I was so anxious, so nervous, so panicky I was pacing our hotel room. Casey was staying at our son’s house. I had to talk to her. I had to know she was okay. I tried calling and got no answer. I texted and got no answer.
My wife couldn’t understand my apprehension and I was afraid we would have to go the ER. Something was happening. It was bad! Major bad! I could hardly breathe. We hurried over to my son’s house and Casey was fine. No problem. It took me about four hours to calm down and then, BAM, the explosions at the Boston Marathon.
I won’t go into this, but this reaction had occurred before in my life, most memorably the week before 9/11. I will share that sometime. Did I have some kind of “evil barometer” in my heart and mind? If I did, I didn’t want it!
Tuesday, Casey had some more “auras” and I insisted she return to the hotel with us that night. It was a good thing. Our suite had two bedrooms and Casey went into her bedroom to change into her pajamas. Suddenly, she was screaming for help. The door was locked! I tried to break it down. No good. Finally, I grabbed a fork from our kitchenette, bent a tine out and stuck it in the little hole on the door handle to open the door. What we found I cannot describe. Casey was totally paralyzed on her bed, unable to move for almost 7 minutes and totally awake the entire time. It was horrendous! It was horrible to stand there and not be able to do a thing!
Finally, it passed and she sobbed and sobbed and sobbed. So did we. She was aware the entire time, remembering everything.
That was when something broke within me. Why was God allowing my daughter to go through this? Wasn’t 18 years of suffering enough? Why didn’t He heal her? Where was He? For the first time, I was feeling anger toward God. For the first time I wanted to ball up my fist and shake it at the heavens and demand that God fix this! I couldn’t even sleep that night. I lay awake in the bed (my wife slept with my daughter) and replayed that scene over and over and over.
There was a debate this past Thursday at Broadmoor Baptist Church between Frank Turek and David Silverman, the head of the American Atheist Society. My apologetic group was involved in setting it up and we had all planned to attend. I told my best friend, Mark Riser that I couldn’t go. I might agree with the atheist!
You see, I know there is a God. My life is a testimony to God’s plan, God’s work, God’s redemption in spite of my failings. I have talked about this in many past posts and in my book, “Conquering Depression”. But, there are times when even the deepest of faiths threatens to crumble under the pain of suffering. Look what Job endured.
So, last night Sherry and I went to the “Hymns” concert at Cypress Baptist Church. My good friend, Philip Wade arranged and orchestrated a concert of his favorite hymns. The Shreveport Symphony played along with three church choirs. It was up lifting. It was exhilarating. It was powerful. The last song was “It is Well With my Soul”. The author of this song had lost his family on a sea voyage and while traveling across the Atlantic to London to meet his grieving wife, he wrote the lines to this powerful song. I still had my daughter!
I came home and watched the replay of the Boston Marathon bombing events from the week. I watched runners turn around and run TOWARD the bomb site to help out. I heard about doctors and nurses who went in to the hospital after running 26 miles to help out. I learned about runners who ran to the hospital to donate blood. I saw men tearing off tee shirts to make tourniquets. I watched first responders rush in to help in spite of the threat of more bombs. In the pursuit of the bombers, I saw men and women law enforcement personnel do everything possible without sleep, against exhaustion to bring the perpetrators to justice so that Boston could breathe a sigh of relief. And, I saw and heard millions raising their voices in prayers to God.
Why is it that we wait until bad things happen to reach out to God? Why is it that we place God somewhere in a closet or on a shelf until we need Him? It seems that this is the kind of God we want. A genie in a bottle who stays out of sight until we need Him.
Well, that was where God was on Monday. That was where God was Tuesday night. Right where we had left Him. For many, God was distant on Monday. For me and my wife, God was right there in that hotel room with us when Casey had her episode. In spite of my doubts and my anger and my anxiety, God will NEVER desert us. His faithfulness is absolute in contrast to my fickle, human nature
Look again at those verses above.
For although they knew God, they did not honor him as God or give thanks to him, but they became futile in their thinking, and their foolish hearts were darkened. Claiming to be wise, they became fools, and exchanged the glory of the immortal God for images resembling mortal man and birds and animals and creeping things.
We want to worship the god we see in the mirror. It is the only god we can control. And, we have this illusion that if we can control god, we have complete freedom. We can do anything we want. It was this freedom of will that allowed two young men, deluded by radicalism, to place bombs at the Boston Marathon. But, in that freedom, we also have the choice to love. And, it is in that love that we truly see God. Not in the broken, failing visage of the mirror. But, in the light that shown across time and space from the ultimate suffering God endured on the cross. No amount of suffering any human can endure can ever match or overcome those last few hours of life of the Son of God. God KNOWS what we are going through. God sends peace and comfort because He has BEEN there! But, we must seek it. We must immerse ourselves continuously in that love.
The days ahead for my daughter are still challenging. She will eventually get on the proper medication for her migraines and one day, she will have a normal life. I trust God to take care of her. He owns her.
When I went through my horrible depression years ago, I never imagined that God would use my suffering to help others. In 2001, my pastor, Mark Sutton and I co-authored “Conquering Depression”. Over the past 12 years, this book has literally saved thousands of lives. I cannot take credit for that. It was not my choice to endure depression and write a book about it. It was God’s plan. And, if I choose, I can look at those years of suffering as a waste, a loss, an abandonment. But, clearly, that suffering was part of God’s plan to help others. Recently, Mark and I were offered a new contract to update our book and we hope to release the new book in the fall of 2014.
My point is, how can I shake my fist in anger at God when He is using that very anger; that very doubt to grow and mature me; to help others who feel that anger and doubt? Rather, I must have a paradigm shift. I must realize that everything works toward the good in God’s plan. Even my daughter’s illness.
I do not know what God has planned for my daughter. But, instead of continuing in anger and doubt, I have chosen another path. I will sit down with my daughter and talk about how God used my depression for good. If I can help her use her illness to help others, then perhaps that is the plan for her life. How many people out there are suffering from the incorrect diagnosis of epilepsy when they are, in fact, having migraines? Our neurologist said, “4 out of 6 neurologists misdiagnose migraines as seizures”! Perhaps this is my daughter’s purpose. Perhaps I can help her see this. And, perhaps once we both realize this is part of God’s plan we both can say, “It is well with my soul”.
I hate waiting.
My father, who will turn 98 tomorrow, was in the ER twice in the past week. Both times, he was in congestive heart failure which means his lungs were full of fluid. I had been in the same ER the week before that with a possible heart attack (all was normal). But, I was getting tired of sitting around and WAITING for something to happen. Turns out my father had eaten two cans of potted meat and each can had 890 milligrams of sodium. His daily limit is 100! All that salt had thrown him in fluid overload.
I had a trip planned last week with my daughter and two sisters to Disney World in Orlando to experience Star Wars Weekends. Both of my sisters decided to stay in town and take care of my father. I had promised my daughter a trip so just the two of us went.
I am a veteran of Disney World and when I tell you that the parks were more crowded than I had ever seen them, that is saying a lot! Rides that no one would get on that usually had no line were upwards of 20 to 30 minutes wait time! I was WAITING again!
To make matters worse, it was raining when we landed on Tuesday evening and it rained continuously until Sunday morning. The last morning in Animal Kingdom was hot and sunny and we only had two hours! But, the real WAIT for me was WAITING for yesterday to arrive.
My daughter, Casey, is now 25 and she has suffered from epilepsy since age 8. Our last neurologist in our home town basically “fired” us and refused to take care of Casey anymore because he was getting out of the business of treating epilepsy. Problem is, in this town with four universities, a nursing school, and a medical school there were NO other neurologists treating adult epilepsy! I could not believe it. It took us four months to find someone and the closest neurologist was in New Orleans, a five hour drive away. So, Casey had an appointment with this new neurologist yesterday. My wife had to stay at home with her mother (who lives with us) so she didn’t get to experience all the magical WAITING in Disney World in a drenching deluge. She drove down to New Orleans Sunday evening and I had to drop my daughter off at a different airport to catch a nonstop flight to New Orleans from Orlando. My flight back to Shreveport was at a different airport.
Watching my daughter, even at the age of 25, walk away from the car into the huge Orlando International Airport alone was one of the hardest things I had to do. Knowing she faced a new doctor the next day and a possible barrage of tests didn’t make it any easier. I was a basket case. I was WAITING again to make sure her flight made it; WAITING again to hear from my wife that she had picked Casey up at the airport. Let’s face it. In today’s world a single young woman traveling alone is ALWAYS at risk!
I arrived at home Sunday evening and my wife’s sister had returned from her vacation to come and stay at our house to take care of her mother. My wife called me later than I wanted her to and told me all was well. But, Casey had a major breakdown once she picked her up at the airport and the two of them spent an hour crying. They were WAITING as well for the next day.
Let me make it plainer. My daughter’s life is rough. She has these “auras” off and on during the day where her mouth will suddenly stop working and she can’t say what is in her brain. Sometimes this lasts for a minute; sometimes for 30 minutes. She has these flashes of light and feelings of “electricity” running through her brain. She has always suffered from the social stigma of being someone with “seizures” and her time in high school was mostly horrific. She worked her tail off just to graduate and every time she gets a break, it seems someone comes along and kicks her in the gut. But, she is a trooper and one of the strongest people I know. I just want my daughter to have a chance at a normal life. Is that too much to ask? It seems my entire family is WAITING.
My wife tells me over the phone that she had a breakthrough this past week. She was worrying and fretting over Casey and the new doctor. She and I had made the realization together that we had done everything possible a parent could do to help our child. Her breakthrough was in realizing that Casey is God’s child, too. And, that God is in control and loves her more than we can ever love her. When she made that breakthrough, she found peace. I was bitter. I had not had this kind of breakthrough. I was still mad and upset and, frankly, WAITING for God to do SOMETHING to help Casey! I did not have peace.
At that moment, another call came in and it was my co-author and one of my best friends in the world, Mark Sutton. Mark was our former pastor and is now retired in Orlando working with Haitians. I had seen him and his wife Donna just the Friday night before while in Orlando. I took his call and told my wife I’d call her right back. What did Mark have to say? Turns out our agent has some inside line to a possible “sequel” book to our “Conquering Depression”. Mark wanted to talk to me briefly about some work we needed to do on the concept because he was going out of the country the next day for his anniversary. I told him I was “discomboobilated” about the whole thing because I couldn’t think past the next day.
Guess what he told me? “Bruce, you need to stop worrying about this new book idea. God is in control. He knows what we need to do and I know you hate WAITING, but God will work it all out. He is in control!”
I almost started crying. Here, in less than two minutes, God had told me twice what I needed to hear. I am NOT in control. That is why I am always WAITING. God is in control and I needed to give up my anxiety to God and let him give me peace. Okay God, I get it!
Fast forward to Monday and a very hectic day back at work and once again WAITING to hear from my wife. She gives me a call at 3 PM that afternoon. And, she drops me a bombshell. This new neurologist is not 100% certain, but he believes that Casey doesn’t have epilepsy but has been suffering from migraines! I couldn’t believe my ears! Migraines? Really? We’ve been treating my daughter for years for epilepsy and all the time she has had migraines? In fact, her medicine for seizures can cause migraines!!!!
So, today, I am once again WAITING for the neurologist to call me and to look at all of Casey’s EEGs. But, this man is more knowledgeable than any doctor she has seen. He specializes in adult epilepsy. I am hoping and praying he is right. Because if he is, then Casey can get off of her epilepsy medicine and have a normal life. We can all stop WAITING.
Today, I am pausing to thank God. He is in control. Man has failed time and time again especially with regard to my daughter. The circumstances that led us to this doctor are phenomenal and clearly impossible without the intervening hand of God. It took years, but we may finally have an answer and an answered prayer.
WAITING? Join the club and remember my favorite verse in all the world:
But they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint. Isaiah 40:31